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Study Overview : DEDICOM

Understanding the Real Cost of Living with Diabetes in Urban India

The DEDICOM-II study is a large-scale, community-based research initiative designed to evaluate the direct out-of-pocket expenditure (OOPE) associated with ambulatory diabetes care in Delhi. Unlike traditional hospital-based studies, this research captures a real-world, population-level perspective, including individuals across socio-economic groups and care pathways.

The study provides critical insights into:

  • Financial burden of diabetes care
  • Variations in cost across healthcare providers
  • Relationship between cost and quality of care

It offers one of the most comprehensive and representative assessments of diabetes-related expenditure in an urban Indian setting.

Study Overview

The Problem

Hidden Financial Burden in Chronic Disease Care

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Diabetes is one of the fastest-growing public health challenges globally, with India at the center of this epidemic.

However, beyond clinical management, a critical but underexplored challenge is the financial burden borne by patients.

Key gaps include:

  • High reliance on out-of-pocket healthcare spending
  • Limited visibility into true community-level costs
  • Significant proportion of patients not accessing formal cares
  • Lack of integrated data linking cost with quality of care
  • Growing inequity in access to effective diabetes management

These challenges make it difficult to design healthcare systems that are both affordable and equitable.

Objective

Evaluating Cost, Access, and Quality of Diabetes Care

The study aims to generate robust, real-world evidence by:

  • Estimating annual out-of-pocket expenditure for diabetes care
  • Understanding cost variations across:
    • Income groups
    • Types of healthcare providers
  • Examining the relationship between:
    • Healthcare spending and quality of care
  • Identifying key determinants influencing cost burden

The objective is to inform policy decisions and health system improvements for better chronic disease management.

Study Design & Methodology

A Community-Based, Multi-Stage Survey Approach

Study Design and Methodology

The DEDICOM-II study uses a rigorous epidemiological design to ensure representativeness and accuracy:

01
  • Two-stage cluster sampling across 30 clusters in Delhi
  • House-to-house survey methodology
  • Inclusion of 843 individuals with known diabetes

Data Collection Included:

02

Direct medical costs:

  • Medicines , Laboratory tests, Consultations, Self-monitoring and Travel
03
  • Socio-demographic characteristics
04

Type of healthcare provider:

  • Government hospitals, Private institutions, Local practitioners, Alternative medicine and Self-care
05
  • Clinical and quality-of-care indicators

This approach enables a comprehensive understanding of both economic and care delivery dimensions.

Intervention:

This study does not introduce a clinical intervention but instead evaluates existing patterns of diabetes care and expenditure across different healthcare pathways.

It analyzes:

  • Patient behavior in choosing care providers
  • Differences in care-seeking patterns
  • Variations in cost across treatment approaches

By studying real-world systems, the research highlights structural inefficiencies and inequities in diabetes care delivery.

Outcome Measures:

    1. Economic Outcomes

  • Annual out-of-pocket expenditure
  • Cost distribution across categories:
    • Medicines, Diagnostics, Consultations and Travel
  • Cost as a proportion of household income

2. Clinical & Care Outcomes

  • Adherence to recommended processes of care
  • Frequency of monitoring and follow-ups
  • Control of key health parameters:
    • Blood glucose, HbA1c, Lipid profile and Blood pressure

Key Findings

High Costs, Unequal Burden, and Trade-offs in Care

The study reveals several critical insights:

Financial Burden

  • Average annual OOPE: ~INR 8,000 (~US$116)
  • Accounts for ~3.6% of annual family income

Inequity in Cost Burden

  • Low-income groups spend up to: 11.8% – 19.1% of annual income on diabetes care

Provider-Based Cost Differences

  • Government facilities: lowest cost
  • Private hospitals: significantly higher cost (~10×)
  • Local providers: moderate but substantial cost

Cost Drivers

  • Medicines contribute to ~68% of total expenditure

Care vs Cost Trade-off

  • Higher spending linked to:
    • Better adherence to care protocols
    • Improved monitoring
  • Lower-cost pathways (self-care/alternative medicine):
    • Poor disease control
    • Lower quality of care

Access Gap

  • ~26% of patients: Not consulting any healthcare provider or relying on self-care with poor outcomes
Key Findings Infographic
Real-World Impact Infographic

Impact

Revealing Gaps in Access, Equity, and Care Delivery

The findings highlight critical system-level challenges:

  • Financial burden restricts access and adherence to care
  • Significant disparities across income groups
  • Quality care is often linked to higher expenditure

Delayed or inadequate care leads to poor disease control

Health System Implications

  • Need for financial protection mechanisms
  • Strengthening public healthcare systems
  • Promoting standardized and affordable care pathways
  • Improving early detection and continuous management

Highlight

Diabetes care in urban India imposes a disproportionate financial burden on the poor, where better quality care often comes at a higher cost

Global Significance

Lessons for Low- and Middle-Income Countries (LMICs)

The study provides valuable insights for global health systems:

01

Highlights the challenge of high out-of-pocket expenditure in chronic diseases

02

Demonstrates the need to balance affordability and quality of care

03

Provides a framework for community-based cost evaluation

04

Relevant for countries with mixed public-private healthcare systems

Supports the global shift toward equitable, accessible, and financially sustainable healthcare systems

Why This Study is Globally Relevant
SACMIND Research Team
About The Research Team

A Multidisciplinary Team in Clinical Research and Public Health

This study was conducted by researchers from:

Sitaram Bhartia Institute of Science and Research (SBISR), New Delhi

The team brings expertise across:

  • Clinical epidemiology
  • Public health research
  • Chronic disease management
  • Health systems and policy

Their work focuses on generating real-world evidence to improve healthcare delivery and equity.

Publication Authority

Published in Diabetes & Metabolic Syndrome: Clinical Research & Reviews (Elsevier)

Out-of-pocket direct cost of ambulatory care of type 2 diabetes in Delhi: Estimates from the Delhi Diabetes Community-II (DEDICOM-II) survey

This peer-reviewed study provides representative, real-world evidence on diabetes care costs and their relationship with care quality in an urban Indian setting.

JMIR Research Protocols Journal

Reimagining Affordable and Equitable Diabetes Care

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